Patient entered data

Patient entered data in primary care

This is a review for the primary care informatics working group of AMIA.

Premise / justification

Scope of the work

Patient entered data for review in primary care setting - Information not knowledge? (e.g., there is a summary on electronic patient education – dispensing knowledge and evaluating) - Telemonitoring? (EPC review exists, even with update) - Other subdomains need to be specified ...

Reason for summary

Many patients, health professionals, and other stakeholders are interested in the feasibility, scientific acceptability, usability, and usefulness of data entered directly by patients for review in the primary care summary. While the perception is that the practice has advanced considerably in the last decade, the evidence about use and best practices of use are not yet well specified. This review attempts to capture the state of the evidence and current practice in order to facilitate appropriate, beneficial use of patient entered data.

Review of previous summaries

- literature review of primary sources - needs to be completed immediately prior to advancement.

Methods

Structure and domains - By function? E.g., HL7 EHR-S function involved? - By domain of information entered? E.g., - By activity? E.g., formal questionnaires, pre-visit assessment, specific quality / safety components, disease status, etc.

Literature review

Terms for lit review

Sources

- local brainstorming and contacts need to be one source

Verification - Recommend ABC abstract review - Then larger abstraction template with inclusion and exclusion criteria included

Formal inclusion and exclusion criteria

Current practice review - best practices (expert) - examples of archetype systems - ?appendix with all discovered systems?

Results

Discussion