Privacy Issues

A biobank is a repository of human biological material DNA or RNA that would allow genetic analysis. It originally referred to large population banks of human tissue and related data. The storage of tissue samples and data linked to them needs to be clearly distinguished. These data comprise information about the donor of the material, such as demographic characteristics, the type of disease associated with the sample, the outcome of the disease, etc.

Consent and anonymization in research involving biobanks

Differing terms and norms present serious barriers to an international framework

Bernice S Elger1 (Author photo) and Arthur L Caplan2 (Author photo)

EMBO Rep. 2006 July; 7(7): 661–666.

A biobank management model applicable to biomedical research Christiane Auray-Blais1 and Johane Patenaude Service of Genetics, Department of Pediatrics, Faculty of Medicine and Health Sciences, Université de Sherbrooke, 3001, 12th Avenue North, Sherbrooke, Qc, J1H 5N4, Canada, BMC Med Ethics. 2006; 7: 4.

Nitika Gupta BMI512 F 2007